Disease Management

1136. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains a national registry, prevalence estimate or centrally collated dataset for Friedreich's ataxia patients in the State. [38848/26]

1203. Deputy Ken O'Flynn asked the Minister for Health the number of confirmed lyme disease cases recorded annually in the State from 2020 to 2026, in tabular form; and if she will make a statement on the matter. [39047/26]

1204. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains national clinical guidance for the diagnosis and treatment of lyme disease; if so, when such guidance was last reviewed or updated; and if she will make a statement on the matter. [39048/26]

1205. Deputy Ken O'Flynn asked the Minister for Health the extent general practitioners receive specific training or continuing professional development guidance relating to lyme disease diagnosis, treatment pathways and long-term complications; and if she will make a statement on the matter. [39049/26]

1206. Deputy Ken O'Flynn asked the Minister for Health if her Department or HSE has conducted a review of delayed diagnosis of lyme disease and associated patient outcomes; and if she will make a statement on the matter. [39050/26]

1207. Deputy Ken O'Flynn asked the Minister for Health the number of patients referred annually for specialist assessment relating to neurological complications associated with lyme disease from 2020 to 2026 [39051/26]

1208. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains a dedicated referral pathway for patients presenting with suspected neurological lyme disease, lyme arthritis or lyme carditis [39052/26]

1209. Deputy Ken O'Flynn asked the Minister for Health the laboratories recognised by the HSE for lyme disease testing; the testing methodologies currently utilised; and if a review of international testing standards has been undertaken since 2020. [39053/26]

1210. Deputy Ken O'Flynn asked the Minister for Health if the Department or HSE has examined international approaches to lyme disease diagnosis, testing and long-term patient management; if so, which jurisdictions were examined; and if she will make a statement on the matter. [39054/26]

1211. Deputy Ken O'Flynn asked the Minister for Health if the HSE collects data on the number of patients presenting with long-term or chronic symptoms following lyme disease infection; and if she will make a statement on the matter. [39055/26]

1212. Deputy Ken O'Flynn asked the Minister for Health the estimated annual expenditure incurred by the HSE in relation to lyme disease diagnosis, treatment and management from 2020 to 2026, in tabular form. [39056/26]

1213. Deputy Ken O'Flynn asked the Minister for Health if a national public awareness campaign relating to tick-borne illnesses and lyme disease has been undertaken since 2020; the associated annual expenditure; and if she will make a statement on the matter. [39057/26]

1214. Deputy Ken O'Flynn asked the Minister for Health if her Department has assessed regional or seasonal trends in lyme disease incidence within the State; and if she will provide details of same. [39058/26]

1215. Deputy Ken O'Flynn asked the Minister for Health if her Department or HSE has engaged with patient advocacy organisations representing persons living with lyme disease since 2020; the groups involved; the dates of engagement; and the outcomes arising from such engagement. [39059/26]

1216. Deputy Ken O'Flynn asked the Minister for Health if any dedicated disability, occupational or psychosocial supports exist for persons experiencing long-term complications associated with lyme disease; and if she will make a statement on the matter. [39060/26]

1217. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains data on waiting times for infectious disease consultations relating to suspected lyme disease; and if she will make a statement on the matter. [39061/26]

1218. Deputy Ken O'Flynn asked the Minister for Health if a review has been undertaken regarding access to intravenous antibiotic treatment for severe lyme disease cases within the public health system; and if she will make a statement on the matter. [39062/26]

1219. Deputy Ken O'Flynn asked the Minister for Health if her Department funds or supports any Irish research projects relating to lyme disease, tick-borne illnesses, or long-term post-infectious complications; the funding allocated annually since 2020; and if she will make a statement on the matter. [39063/26]

1220. Deputy Ken O'Flynn asked the Minister for Health if lyme disease is included within national communicable disease surveillance and reporting frameworks operated by the HSE and Health Protection Surveillance Centre; and if she will make a statement on the matter. [39064/26]

1221. Deputy Ken O'Flynn asked the Minister for Health the number of hospital admissions annually associated with lyme disease, neurological lyme disease, lyme carditis or lyme arthritis from 2020 to 2026, in tabular form. [39065/26]

1222. Deputy Ken O'Flynn asked the Minister for Health if her Department has assessed the economic and workforce impact associated with long-term lyme disease illness, including inability to work and disability-related impacts; and if she will make a statement on the matter. [39066/26]

365. Deputy Michael Cahill asked the Minister for Health if she will intervene to ensure that the HSE urgently prioritises a conclusion to the skyclarys reimbursement negotiations (details supplied); her views on whether the current delay aligns with the "equitable access" promised in the newly launched National Rare Disease Strategy 2025-2030; and if she will make a statement on the matter. [3859…

1195. Deputy Cathal Crowe asked the Minister for Health if she will confirm whether Action 4 of the HSE position paper on FASD Prevention, published in September 2022, namely has now been completed (details supplied); the total cost associated of the campaign; the due diligence that was carried out to ensure any external designers, consultants, advertising agencies or suppliers engaged as part of …

1238. Deputy Pádraig Rice asked the Minister for Health if she will commit to establishing early access schemes for new medicines for the treatment of rare diseases; and if she will make a statement on the matter. [37774/26]

1239. Deputy Pádraig Rice asked the Minister for Health the status of the Programme for Government commitment and National Rare Disease Strategy recommendation to consider early access schemes for rare diseases; the status of these considerations; the work carried out to date; the timeline she is working towards in completing this work; and if she will make a statement on the matter. [37775/26]