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counterparts for access to these medicines. It is often in excess of 800 days. For a person with Duchenne muscular dystrophy or Friedreich's ataxia, those 800 days or so are time they do not have. This summer, we saw Skyclarys approved for Friedreich's ataxia after

Deputy Pádraig Mac Lochlainn asked the Minister for Health the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to ensure that people living with Friedreich’s ataxia can access timely specialist review and annual multidisciplinary assessments in line with recognised European

Deputy Michael Cahill asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 due to capacity constraints at the combined ataxia clinic at Tallaght … will have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken. [70235/26

Deputy Pádraig Mac Lochlainn asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 due to capacity constraints at the Combined Ataxia Clinic … will have commenced treatment; whether additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment. [70248/26

Deputy Louis O'Hara asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 due to capacity constraints at the combined ataxia clinic … will have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to address the delays. [70309/26

Deputy Conor D. McGuinness asked the Minister for Health whether she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing a drug (details supplied) despite its reimbursement from 1 October 2026 due to capacity constraints at the Combined Ataxia … will have commenced treatment; whether additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken. [70419/26

Deputy Shay Brennan asked the Minister for Health if she is aware of concerns that some people living with Friedreich’s ataxia may face significant delays in accessing skyclarys (omaveloxolone) despite its reimbursement from 1 October 2026 (details supplied); the estimated timeframe within which all eligible patients will … have commenced treatment; if additional resources will be provided to support treatment initiation and monitoring; the current waiting time for a Friedreich’s ataxia clinic appointment; and the measures being taken to address access to timely specialist review and annual multidisciplinary assessments. [70468/26

Deputy Barry Heneghan asked the Minister for Health whether she is aware of delays in accessing a drug (details supplied) for Friedreich’s ataxia due to capacity constraints at the Combined Ataxia Clinic, Tallaght University Hospital; the timeframe for all eligible patients to commence treatment; whether additional resources