young people all suffer from Friedreich's Ataxia and they need the Government's help with regard to approving funding for the drug Skyclarys, which will make a huge difference to their lives. Today, their parents said, "Our kids don't have the luxury of time." They said … asking the Taoiseach and the Minister for Health to help these people and to urge the HSE to approve the funding for Skyclarys drug
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In parliamentary questions
Peter 'Chap' Cleere
Written
Deputy Peter 'Chap' Cleere asked the Minister for Health if the medicine skyclaris/ omaveloxalone will be reimbursed by the HSE as it is the only drug approved to treat Freidreicsh’s ataxia; and if she will make a statement on the matter. [11491/26
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