Hoireabhaird from Kildare and Oisín Pollard from Carlow - and their families attended the AV room to raise awareness around the rare disease, Friedreich's Ataxia. These five young people all suffer from Friedreich's Ataxia and they need the Government's help with regard to approving funding
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In debates
In parliamentary questions
John McGuinness
Written
Deputy John McGuinness asked the Minister for Health if the drug sky clarys (omaveloxolone) used for the treatment of Friedreichs ataxia will be made available under licence in Ireland; if she will outline the process to licence the drug; the timeline involved; and if she will make
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