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companies. At the very least he should be making the case to the European Commission. Another avenue that I think might be worth exploring, one closer to home, is the powers conferred on the Minister under section 10 of the Electricity Regulation Act 1999, which allows a Minister … intended to achieve a permanent rebalancing of network tariffs by shifting part of the transmission and distribution network costs away from large industrial users and onto domestic customers. It reduced costs for around 1,500 corporate energy users and was ended in 2022. Perhaps the Minister could consider

much we do not know about this syndrome. However, ongoing international research seeks to provide a better understanding of Okur-Chung syndrome and explore possible treatment options. The recently published national rare disease strategy acknowledges the important role research plays in developing a better understanding of the mechanisms … Research in Ireland is further supported by the involvement of patient advocacy groups such as the Irish Platform for Patients Organisations, Science and Industry, IPPOSI, and Rare Diseases Ireland, RDI, which, through ensuring that research is aligned with patient priorities, advocate and provide a voice for the needs