1238. Deputy Pádraig Rice asked the Minister for Health if she will commit to establishing early access schemes for new medicines for the treatment of rare diseases; and if she will make a statement on the matter. [37774/26]
Parliamentary questions
Questions
TDs ask ministers questions to get answers on the record, most of them in writing. Here is every one asked in the 34th Dáil, by the department it went to and the subject heading it was filed under. How questions work
Browse the questions
Showing questions asked by Pádraig Rice under the heading Disease Management.
16 questions match, newest first.
1239. Deputy Pádraig Rice asked the Minister for Health the status of the Programme for Government commitment and National Rare Disease Strategy recommendation to consider early access schemes for rare diseases; the status of these considerations; the work carried out to date; the timeline she is working towards in completing this work; and if she will make a statement on the matter. [37775/26]
1201. Deputy Pádraig Rice asked the Minister for Health to clarify if private patients who were previously in a programme can be included in the Chronic Disease Management (CDM) programme (details supplied); the plans to expand CDM eligibility to include all patients with chronic diseases, irrespective of their general medical services or doctor visit card status; and if she will make a statement on the matter. [1040…
245. Deputy Pádraig Rice asked the Minister for Social Protection if he will urgently reconsider the decision not to recognise Covid-19 as an occupational illness; to outline in detail the reason Ireland remains an outlier in the European Union, as one of only two Member States that does not formally recognise Covid-19 as an occupational illness; and if he will make a statement on the matter. [70716/25]
1063. Deputy Pádraig Rice asked the Minister for Health her plans to establish and resource Huntington’s disease specialist multi-disciplinary teams (details supplied); the timeline for same; and if she will make a statement on the matter. [70212/25]
100. Deputy Pádraig Rice asked the Minister for Health if her attention has been drawn to a 30% rise in the incidence of tuberculosis in the past year; if she will provide an update on the implementation of ‘Striving to End Tuberculosis: A strategy for Ireland 2024-2030’; if she will publish an implementation plan and provide the necessary funding; and if she will make a statement on the matter. [52409/25]
2541. Deputy Pádraig Rice asked the Minister for Health if she will consider including Guillain–Barré syndrome as a long-term illness considering the disease presents similarly to other illnesses included on the list; if consideration has been given to re-examining the eligibility criteria for the long-term illness scheme to expand the scheme; and if she will make a statement on the matter. [46636/25]
866. Deputy Pádraig Rice asked the Minister for Health her plans to agree and progress the early access programme for rare diseases; the timeline she is working towards; and if she will make a statement on the matter. [38734/25]
378. Deputy Pádraig Rice asked the Minister for Health to provide an update on the endometriosis framework; the reasons for the delay in finalising this framework; the current timeline she is working towards for publication; and if she will make a statement on the matter. [26568/25]
799. Deputy Pádraig Rice asked the Minister for Health if she will establish a clinical programme for pulmonary fibrosis, to ensure that patients receive the highest standard of care and equitable access to a range of specialist healthcare supports; and if she will make a statement on the matter. [25274/25]
800. Deputy Pádraig Rice asked the Minister for Health the reason the clinical care pathway advisor for pulmonary fibrosis has not yet begun their work; the timeline she is working towards in ensuring this person is in post with supporting resources; the reason the supporting programme manager has still not commenced their work; and if she will make a statement on the matter. [25275/25]
801. Deputy Pádraig Rice asked the Minister for Health to provide an update on the €1 million funding allocated to pulmonary fibrosis, including the specific line items detailed in the 2025 HSE national service plan (details supplied); and if she will make a statement on the matter. [25276/25]
802. Deputy Pádraig Rice asked the Minister for Health the steps she is taking to ensure that oxygen provision for people with lung fibrosis is fit for purpose; if consideration will be given to a proposal (details supplied); and if she will make a statement on the matter. [25277/25]
845. Deputy Pádraig Rice asked the Minister for Health if she has plans to extend the chronic disease management programme to include epilepsy; if so, the timeline she is working towards; if not, the rationale for continuing to exclude this condition from the programme; and if she will make a statement on the matter. [25713/25]
188. Deputy Pádraig Rice asked the Minister for Children, Equality, Disability, Integration and Youth the supports available to people that suspect that they are living with foetal alcohol spectrum disorder, in particular those who are under the age of 16 years of age; and if she will make a statement on the matter. [14312/25]
191. Deputy Pádraig Rice asked the Minister for Children, Equality, Disability, Integration and Youth the criteria used and the steps taken to diagnose foetal alcohol syndrome and partial foetal alcohol syndrome; and if she will make a statement on the matter. [14315/25]