2053. Deputy Ken O'Flynn asked the Minister for Health whether the proposed rare disease early-access framework will include formal eligibility criteria, maximum decision timelines, independent clinical oversight arrangements, and national equity safeguards; and if she will make a statement on the matter. [42490/26]
Parliamentary questions
Questions
TDs ask ministers questions to get answers on the record, most of them in writing. Here is every one asked in the 34th Dáil, by the department it went to and the subject heading it was filed under. How questions work
Browse the questions
Showing questions asked by Ken O'Flynn under the heading Disease Management.
40 questions match, newest first.
2054. Deputy Ken O'Flynn asked the Minister for Health whether her Department has conducted any estimate of the potential annual cost exposure associated with a rare disease early-access framework; and if she will make a statement on the matter. [42491/26]
2055. Deputy Ken O'Flynn asked the Minister for Health whether any ethical or legal review has been conducted regarding prioritisation criteria within the proposed early-access framework for rare diseases; and if she will make a statement on the matter. [42492/26]
2056. Deputy Ken O'Flynn asked the Minister for Health whether patient registries or national prevalence datasets will form part of the planned rare disease reimbursement reforms; and if she will make a statement on the matter. [42493/26]
2328. Deputy Ken O'Flynn asked the Minister for Health whether any national respiratory disease monitoring, surveillance, forecasting, winter-planning, population-health management or health-service demand forecasting system currently incorporates prescribing, reimbursement or utilisation data held by the Primary Care Reimbursement Service; if so, to identify each such system, the datasets used, the purpose for which…
1136. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains a national registry, prevalence estimate or centrally collated dataset for Friedreich's ataxia patients in the State. [38848/26]
1203. Deputy Ken O'Flynn asked the Minister for Health the number of confirmed lyme disease cases recorded annually in the State from 2020 to 2026, in tabular form; and if she will make a statement on the matter. [39047/26]
1204. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains national clinical guidance for the diagnosis and treatment of lyme disease; if so, when such guidance was last reviewed or updated; and if she will make a statement on the matter. [39048/26]
1205. Deputy Ken O'Flynn asked the Minister for Health the extent general practitioners receive specific training or continuing professional development guidance relating to lyme disease diagnosis, treatment pathways and long-term complications; and if she will make a statement on the matter. [39049/26]
1206. Deputy Ken O'Flynn asked the Minister for Health if her Department or HSE has conducted a review of delayed diagnosis of lyme disease and associated patient outcomes; and if she will make a statement on the matter. [39050/26]
1207. Deputy Ken O'Flynn asked the Minister for Health the number of patients referred annually for specialist assessment relating to neurological complications associated with lyme disease from 2020 to 2026 [39051/26]
1208. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains a dedicated referral pathway for patients presenting with suspected neurological lyme disease, lyme arthritis or lyme carditis [39052/26]
1209. Deputy Ken O'Flynn asked the Minister for Health the laboratories recognised by the HSE for lyme disease testing; the testing methodologies currently utilised; and if a review of international testing standards has been undertaken since 2020. [39053/26]
1210. Deputy Ken O'Flynn asked the Minister for Health if the Department or HSE has examined international approaches to lyme disease diagnosis, testing and long-term patient management; if so, which jurisdictions were examined; and if she will make a statement on the matter. [39054/26]
1211. Deputy Ken O'Flynn asked the Minister for Health if the HSE collects data on the number of patients presenting with long-term or chronic symptoms following lyme disease infection; and if she will make a statement on the matter. [39055/26]
1212. Deputy Ken O'Flynn asked the Minister for Health the estimated annual expenditure incurred by the HSE in relation to lyme disease diagnosis, treatment and management from 2020 to 2026, in tabular form. [39056/26]
1213. Deputy Ken O'Flynn asked the Minister for Health if a national public awareness campaign relating to tick-borne illnesses and lyme disease has been undertaken since 2020; the associated annual expenditure; and if she will make a statement on the matter. [39057/26]
1214. Deputy Ken O'Flynn asked the Minister for Health if her Department has assessed regional or seasonal trends in lyme disease incidence within the State; and if she will provide details of same. [39058/26]
1215. Deputy Ken O'Flynn asked the Minister for Health if her Department or HSE has engaged with patient advocacy organisations representing persons living with lyme disease since 2020; the groups involved; the dates of engagement; and the outcomes arising from such engagement. [39059/26]
1216. Deputy Ken O'Flynn asked the Minister for Health if any dedicated disability, occupational or psychosocial supports exist for persons experiencing long-term complications associated with lyme disease; and if she will make a statement on the matter. [39060/26]
1217. Deputy Ken O'Flynn asked the Minister for Health if the HSE maintains data on waiting times for infectious disease consultations relating to suspected lyme disease; and if she will make a statement on the matter. [39061/26]
1218. Deputy Ken O'Flynn asked the Minister for Health if a review has been undertaken regarding access to intravenous antibiotic treatment for severe lyme disease cases within the public health system; and if she will make a statement on the matter. [39062/26]
1219. Deputy Ken O'Flynn asked the Minister for Health if her Department funds or supports any Irish research projects relating to lyme disease, tick-borne illnesses, or long-term post-infectious complications; the funding allocated annually since 2020; and if she will make a statement on the matter. [39063/26]
1220. Deputy Ken O'Flynn asked the Minister for Health if lyme disease is included within national communicable disease surveillance and reporting frameworks operated by the HSE and Health Protection Surveillance Centre; and if she will make a statement on the matter. [39064/26]
1221. Deputy Ken O'Flynn asked the Minister for Health the number of hospital admissions annually associated with lyme disease, neurological lyme disease, lyme carditis or lyme arthritis from 2020 to 2026, in tabular form. [39065/26]